Nu har jag uppfyllt det löfte jag svor att förverkliga när jag insåg varför min lilla babydotter dog – för 19 år sedan den 28 juli 1999. Jag är medlem i Ad Hoc Committee och var med och såg till att detta skulle hända genom att vittna inför Dr Dainius Puras i FN, Geneve:
Another year has gone by…
Today it is exactly 18 years ago that I lost the most precious thing one can have, to love and hold. And the beginning of my destiny as a lyme warrior – although I did not know it at the time.
Only that it was a mystery to the pathologist that my daugther died as an ”aids” patient i. e. she was gravelly immunosuppressent (and she was born as a diabetic with low liver function).
Today I know both events are effects of being born with lyme disease and bartonella.
For me this day is in rememberance of my Emma – that died from congenital lyme and coinfections on the 28th of july 1999, and she died three weeks after she was born – and a celebration of my mission in life. My strenght in heart and soul to never give up and to never accept this fate.
That is my fight. NO OTHER MOTHER.
That is why I’m doing what I’m doing and I am where I am in life.
A Lyme warrior. For the children. The innocent.
UPDATE 28th july 2018:
Today it is 19 years ago since my baby daughter Emma died of undiagnosed congenital lyme disease. But now I have fullfilled my promise to her. The WHO ICD codes are being updated to be implimented in 2019. Congenital Lyme Disease will get its code and is being recognized.
I was part of the process (and Jenna Luche-Thayer’s team) by testifying to The Special Rapporteur Dr Dainius Puras of UN in Geneva last summer.
It is with a totally new feeling I will visit her grave when the sun comes out again later today… it’s a kind of closure I’ve worked very hard for a loooooong time, to achieve.
🕊 Pax Vobiscum
Ytterligare ett delmål i kampen avklarat .
Ordförande VIDAS, delegat för Global Network On Institutionalized Discrimination, medlem Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes, administratör för BOTA BORRELIA-gruppen på Facebook, administratör för Bota borrelia-bloggen, F. d. Ordförande för Borrelia & TBE föreningen Sverige. Lyme advocate & citizen researcher
Angelica Johansson, President VIDAS, delegate Global Network On Institutionalized Discrimination, member of the Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes, main administrator for the ”Cure Lyme Now” Facebookgroup, administrator for the ”Cure lyme blog”, Former President for The Swedish Lyme Association. Lyme advocate & citizen researcher